Monthly Archives: October 2015

Joan says what living with ME is really like

More now on what it’s like to live with ME, or chronic fatigue syndrome, as it’s also known.

On Mandate At One yesterday, we heard from Joan, an Island resident who has lived with the condition for the last 13 years or so.

She explained the difficulties she had experienced with being correctly diagnosed.

Today, we’ll hear about what it was like once she was told she had ME.

Joan told Ed Oldham that as there is currently no cure, it very much a case of trying to manage the condition:

Intro to Dr Shepherd Interview 2015 09

A lack of treatment options for chronic fatigue syndrome sufferers is costing the economy up to three million pounds per year.

That’s the view of an eminent medicial expert, who has visited the Island recently to talk to sufferers and ministers about the condition.

Dr. Charles Shepherd is the medical advisor to the British M.E. Association.

He says that misdiagnosis, and a lack of effective on-Island support, makes it an unncecessarily expensive problem.

It’s also making life much more difficult for Manx people living with M.E.

Following a well-attended talk in Onchan last week, Dr. Shepherd met with officials from the Health and Treasury departments.

He advised that a more efficient treatment system could cut costs by a significant amount.

Speaking to Alex Bell, Dr. Shepherd joined Celia Marshall of the M.E. Isle of Man Support Group to discuss the implications of a relatively under-reported illness:

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