Update 33 – Feb 2017

Next Monthly Meetings

Sat 11 Mar 2017 at 2.00pm

Onchan Main Road Methodist Church Lounge

Mick Quinn will be leading a short chair based relaxing Tai Chi session. He suffers from ME himself, so understands what aids recovery. Followed by informal coffee and chat. Family and Friends always welcome.

Sat 1 April, 2.00pm

AGM at Onchan Methodist

Please come along. The formal meeting will be short, followed by refreshments.
It is a good chance to catch up with other members.

Linda Tannenbaum, CEO Open Medicine Foundation in California, will visit the Island 24 – 26 May 2017. We hope you will come and see her, and support this visit. She has a daughter who had sudden inset ME at the age of 16.

She will be meeting Minister Kate Beecroft DHSC, doctors, politicians, ME Support members, and Manx Radio. This is part of our campaign to persuade the DHSC to provide a proper support service for ME.

Your chance to meet her:

Wed 24 May: 3.00-4.30 Informal meetings at Onchan Methodist Church lounge

Wed 24 May: 7.30pm Public Meeting and Presentation ME: A Major Health Crisis

Onchan Methodist Church

Thurs 25 May: 7.30pm Buffet Social at Celia’s house.

All members invited. Please let Celia know if you wish to come 621925 celia@manx.net

For info go to their website. The mission, of the Open Medicine Foundation, is to fund and initiate collaborative and groundbreaking research into chronic complex diseases so that patients will be able to live life more fully. Led by our esteemed ME/CFS Scientific Advisory Board, they are now focused on the End ME/CFS Project, designed to find biomarkers and effective treatments for myalgic encephalomyelitis / chronic fatigue syndrome (ME/CFS). These findings should also provide insights into related diseases, such as fibromyalgia and Lyme disease.

Many thanks to renowned local band Pigs on the Wing who did a concert on 4 Feb at Port St Mary Town Hall, in aid of ME Support (IOM). We collected £187 in a bucket collection, and will also receive a share of the profits from the concert.